Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.
It is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.
I support this skin condition, as well as my grandparents (Mary Withey and Antony Withey). In year 4 and 5 I have made poster and a power point. Here are some of the celebrities who support this awful skin condition: The Cheeky Girls, who wants to be a millionaire’s own Chris Tarrant and even Graham Norton.
This is the views from Harry Benham in 6JH. “I, think that people with eb are unfortunate because they can’t get around that well and if one of their blisters burst they can’t get a hug from mum to help.”